Topical Steroid Withdrawal: A Condition Deserving More Attention

Someone applies cream to the neck of a patient with topical steroid withdrawal

What is steroid withdrawal?

Topical Steroid Withdrawal, also known as Red Skin Syndrome, is a condition that remains unrecognized by many in the medical community. Raising awareness around this syndrome is essential as it affects individuals who rely on topical steroids for managing chronic skin conditions like eczema.

Understanding Topical Steroid Withdrawal

The exact cause and mechanism of Topical Steroid Withdrawal are still not fully understood, and more research is necessary to explore this condition further. However, it is believed that long-term use of mid to high potency topical steroids can lead to Topical Steroid Withdrawal.

Topical steroids come in various strengths, with over-the-counter options being extremely low potency, such as hydrocortisone or cortisone 10. Prescribed steroids, on the other hand, tend to be much stronger and are commonly used by individuals with chronic conditions like eczema. These individuals often use these steroids on and off throughout their lives.

Topical Steroid Withdrawal has been reported to occur mostly in adult women and individuals who have applied the steroids on their face or genital areas. These areas are prone to eczema as well; however, no other common factors have been identified yet.

What happens if you suddenly stop taking steroids?

Topical Steroid Withdrawal can present several distressing symptoms, including:

  • Pain

  • Itch

  • Burning

  • Flaking

  • Wrinkling of the skin

Long-term chronic suffering from this condition can lead to additional complications, such as:

  • Hair loss

  • Fatigue

  • Depression

Many individuals suffering from chronic Topical Steroid Withdrawal Syndrome end up homebound or on disability, unable to carry on with their daily lives.

Can TSW be cured?

Hope on the Horizon: Dupixent (Dupilumab)

Thankfully, there is hope for people affected by Topical Steroid Withdrawal in the form of a recently approved medication, Dupixent (dupilumab). This medication has shown promising results for individuals seeking relief from this debilitating condition.

If you or someone you know is suffering from Topical Steroid Withdrawal, it's crucial to find a local board-certified dermatologist that you trust and inquire about Dupixent as a potential treatment option.

For more information on this medication and Topical Steroid Withdrawal in general, you can visit the National Eczema Association website, which provides valuable resources and guidance.

As awareness and understanding of Topical Steroid Withdrawal improve, so do the possibilities for effective treatment and support. Continuing discussions around this condition is essential to ensuring that the medical community and individuals living with Topical Steroid Withdrawal can work together towards a brighter future.



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